Role of gender and age in the cooperation between parents of people with intellectual disabilities and professional staff in care centres
https://doi.org/10.33700/jhrs.1.1.39
Keywords:
gender, age, parents of people with intellectual disabilities, professional staff, cooperationAbstract
Introduction: understanding factors that influence the cooperative relationship between parents of people with intellectual disabilities and professional staff comes from understanding how parents and staff function and, on this basis, from understanding their abilities and skills reflected in their interactions and cooperation.
This paper presents some results of a broader study which examined:
The aim or research question is how the level of the cooperative relationship between the parents of persons with moderate, severe and profound learning disabilities and the professional staff of Training, Occupation and Care Centres in Slovenia is correlated to the age and gender of parents, and the age and gender of staff. In addition, the study focused on investigating how the gender and age of parents and staff correlates with their inclusion in support groups.
Methods: the sample comprised 296 randomly selected parents and 298 randomly selected professional staff. The statistical method of two-way analysis of variance was applied to establish the differences in the level of the cooperative relationship given the gender and the age of the parents and staff.
Results: the results confirmed differences relative to the age of the male staff, namely, that with their age the degree of co-operation relationship with parents increases and that fathers are statistically significantly less involved in support groups than mothers.
Conclusions: we draw attention to certain concepts associated with a successful cooperative relationship, helping to better understand this relationship and seek new possibilities for more effective cooperation between the parents of PID placed in centres and the staff employed at these centres in Slovenia.
Downloads
Metrics
References
Artaraz, K. (2006). The wrong person for the job? Professional habitus and working cultures in con-nexions. Critical Social Policy, 26(4), 910–931. DOI: https://doi.org/10.1177/0261018306068483
Beirne-Smith, M. (2002). Mental Retardation. New Jersey. Merrill, Prentice Hall, 149-303.
Beveridge, S. (2004). Pupil participation and the home-school relationship. European Journal of Special Needs Education, 24(4), 150–151. DOI: https://doi.org/10.1080/0885625032000167115
Beveridge, S. (2005). Developing partnership for Inclusive Education. Children, families and schools. London, New York: Routhledge Falmer 2, Park Square.
Bignal T. (2015). Europe 2020 and the European Semester bringing wellbeing to all? EASPD - Eu-ropean Association of Service Providers for Per-sons with Disabilities representing social service provider organizations across Europe and across disability. Improving services improving lives. Con-tributions from EASPD members.
Blue-Banning, M. Summers, J. A., Frankland, H.C., Nelson, L.L.˘& Beegle, G. (2004). Dimensions of family and professional partnerships. Constructive guidelines for collaboration. Exceptional Children, 70, 167–184. DOI: https://doi.org/10.1177/001440290407000203
Brazier, M., Archard, D. & Franck, L. (2006). Criti-cal care decisions in fetal and neonatal medicine. Ethical Issues. London. Nuffield Council on Bio-ethics.
Brett, J. (2002). The Experience of Disability from the Perspective of Parents of Children with Pro-found Impairment. Is it time for an alternative model of Disability. Disability & Society, 17(7), 825–844. DOI: https://doi.org/10.1080/0968759022000039109
Campbell, L.D. & Carroll, M.P. (2007). The incom-plete revolution – Theorizing gender when study-ing men who provide care to aging parents. Men and Masculinities, 9(4), 49-508. DOI: https://doi.org/10.1177/1097184X05284222
Dale, N. (1996). Working with families of children with special needs. Partnership and Practise. Lon-don, New York. Routhledge. DOI: https://doi.org/10.4324/9780203296028
Davies S., Hall, D. (2005). »Contact a Family«. Professionals and Parents in Partnership. Archives of Disease in Childhood, 90(10), 1053–1057. DOI: https://doi.org/10.1136/adc.2004.070706
Demšar, I. (2003). Sindrom izgorelosti pri učiteljih. Magistrsko delo. Ljubljana. Univerza v Ljubljani, Filozofska fakulteta.
Depolli, K. (2002). Delovna preobremenjenost kot izvor z delom povezanega stresa pri učiteljih. Mag-istrsko delo. Ljubljana: Univerza v Ljubljani, Filozofska fakulteta.
Douglas, S.& Michaels, M. C. (2004). The mummy myth. The idealization of motherhood and how it has undermined women. New York. Free Press.
Fengler, J. Anželj, S. & Mrevlje, G. (2007). Nudenje pomoči utruja. O analizi in obvladovanju izgorelosti in poklicne deformacije. Ljubljana. Temza.
Flaker, V., Rafaelič, A., Bezjak, S., Ficko, K., Grebenc, V., Mali, J. et al. (2015). Framework for deinstitutionalisation in Slovenia. Ministry of labour, family, social affairs and equal opportunities.
Gillies, V. (2005). Raising the »Meritocracy«. Par-enting and the individualization of social Class. So-ciology of Health & Illness, 39(5), 835-853. DOI: https://doi.org/10.1177/0038038505058368
Goodley D & Lawthom R. (2005a). Journeys in Emancipatory Disability Research. Alliances be-tween Community Psychology and Disability Studies. Disability & Society, 20(2), 135-151. DOI: https://doi.org/10.1080/09687590500059077
Howard, V.F., Williams, B.F., Port, P.D. & Lepper, C. (1997). Very young children with special needs. A formative approach for the 21st century. Upper Saddle River, NJ: Merrill Prentice Hall.
Hrastar, F. (1990). Pravica otroka do družine. Steno-gram okrogle mize Dobrna. Dobrna. Center Dolfke Boštjančič- CUDV Draga.
Ibralić, F. (2002). Adaptivno ponašanje osoba s men-talnom retardacijom. Doktorska disertacija. Tuzla. Defektološki fakultet Univerziteta u Tuzli.
Jenks, E.B. (2005). Explaining Disability - Parent's Stories of raising Children with Visual Impair-ments in a Sighted World. Journal of Contempo-rary Ethnography, 34(2), 143-169. DOI: https://doi.org/10.1177/0891241604272064
Johnston, D.D. & Swanson, D.H. (2006). Con-structing the »Good mother«. The experiance of mothering ideologies by work status. Sex Roles, 54(7-8), 509-519. DOI: https://doi.org/10.1007/s11199-006-9021-3
Karten, T. J. (2005). Inclusion strategies. That work! Research - Based Methods for the Classroom. Cali-fornia: Corvin Press.
Kobolt, A. & Žorga, S. (1999). Supervizija: proces razvoja in učenja v poklicu. Ljubljana. Univerza Ljubljana, Pedagoška fakulteta Ljubljana.
Končar, M. & Antič, S. (2006). Starši in oblikovanje individualiziranega programa. Ljubljana. Defektologica Slovenica,14(3), 7-16.
Ledwith, M. (2006). Community Development. A critical approach. Bristol. The Policy Press.
Lewis, J. (2007). Gender, ageing and the »New Social Settlement« - the importance of developing a holistic approach to care policies. Current Sociol-ogy, 55(2), 271-286. DOI: https://doi.org/10.1177/0011392107073314
Lindblad, B.M., Holritz-Rasmussen, B., Sandman & P.O. (2007). A Life Enriching Togetherness – Meanings of Informal Support when being a Par-ent of a Child with Disability. Journal of Contem-porary Ethnography, 21(2), 238-246. DOI: https://doi.org/10.1111/j.1471-6712.2007.00462.x
Linn, S. (2000). Coping and adaptation in families of children with cerebral palsy. Exceptional Children, 66(2), 201-218. DOI: https://doi.org/10.1177/001440290006600205
Markowitz, J. (2001). Personell to support the educa-tion of children and youth with deafblindness QTA. National association of State Directors of Special Education Inc. Project Forum U. S. Dept. of Education Office of Educational Research and Improvement. Educational Resources Information Center.A brief analysis of a critical issue in special education. Quick turn round. Su Doc Ed 1, 310(2), 454-637.
McLaughlin J., Goodley D., Clavering E. & Fisher P. (2008). Families raising disabled children. Ena-bling care and social justice. Great Britain. CPI An-tony Rowe: Chippenham and Eastbourne. DOI: https://doi.org/10.1057/9780230583511
McLaughlin, J. (2005). Exploring Diagnostic Pro-cesses. Social Science Perspectives. Archives of Diseases in Childhood, 9(3), 284-287. DOI: https://doi.org/10.1136/adc.2004.052118
McLaughlin, J. & Goodley, D. (2008). Seeking and rejecting certainty. Exposing the sophisticated lifeworlds of parents of disabled babies. Sociology, 42(2), 317-335. DOI: https://doi.org/10.1177/0038038507087356
Morgan, P.L. (2006). Parenting Your Complex Child: become a powerful advocate for the autistic, Down Syndrome, PDD, bipolar, or other special-needs child. New York/ Broadway: American Management Association.
Novak, M. (2006): Stiki med starši in otroki z motnjami v duševnem razvoju, vključenimi v Cen-ter. Ljubljana. Defektologica Slovenica, 14(2), 59-76.
Novak, M. (2011). Sodelovanje med starši in strokovnimi delavci v socialnovarstvenih zavodih. Doktorsko delo. Ljubljana: Univerza v Ljubljani, Pedagoška fakulteta.
Novak, M. & Končar, M. (2013). Vključenost staršev oseb s posebnimi potrebami v podporne skupine glede na nekatere demografske podatke. Ljubljana. Defektologica Slovenica, 21(2), 7-24.
Novak, M. & Koncar, M. (2014a). Cooperative relationship between the parents of persons with intellectual and developmental disabilities and pro-fessional staff. Innovative Issues and Approaches in Social Science, 7(1), 32–52. DOI: https://doi.org/10.12959/issn.1855-0541.IIASS-2014-no1-art03
Novak, M. & Koncar, M. (2014b). The role of sup-port groups in the cooperation between parents of people with intellectual disabilities and professional staff. Journal of Special Education and Rehabilita-tion, 15(3-4), 95-110. DOI: https://doi.org/10.2478/jser-2014-0013
Novljan, E. (2004). Sodelovanje s starši otrok s pose-bnimi potrebami pri zgodnji obravnavi. Ljubljana: Zveza Sožitje, Zveza društev za pomoč duševno prizadetim Slovenije.
Novljan, E. & Jelenc, D. (2000). Izobraževanje od-raslih oseb z motnjami v duševnem razvoju. Ljubljana: Center Kontura.
O΄Shea, D.J. & O΄Shea, L.J. (2001). Why learn about student families? American Journal of Men-tal Retardation, 94, 231-239.
O’Shea, D. J., O’Shea, L. J., Algozzine, R. & Ham-mitte, D. J. (2001). Families and teachers of indi-viduals with disabilities. Collaborative orienta-tions and responsive practices. United States: A Pearson Education Company, Needham Heights, MA.
O'Brien, M. (2007). Mothers' emotional care work in education and its moral imperative. Gender and Education, 19(2), 159-177. DOI: https://doi.org/10.1080/09540250601165938
ONS (Office of National Statistics), (2007). Unpaid care. Cohabiting couples provide less unpaid care. London: Stationery Office.
Pelc, J. (2007, January 5). Sodelovanje s starši. http://www2.arnes.si/osljjk 1 s/07 -zdrava/sods.htm.
Placement of Children with Special Needs Act (2011). Zakon o usmerjanju otrok s posebnimi po-trebami (2011). ZUOPP – Uradni list RS, 58/2011.
Pols, J. (2006). Accounting and Washing – Good Care in Long-term Psychiatry. Science, Technolo-gy & Human Values, 31(4), 409-430. DOI: https://doi.org/10.1177/0162243906287544
Ramšak, M. (2010). Razumevanje mobilnosti. Ljubljana. Vita, (73), 9-10.
Read J. (2002). Will the carers and disabled children Act 2000 make a difference to the lives of disabled children and their carers? Child: Care, Health and Development, 28(4), 272-275. DOI: https://doi.org/10.1046/j.1365-2214.2002.00275.x
Rener, T., Švab, A., Žakelj, T. & Humer, Ž. (2006). Analiza očetovstva ter predlogi za izboljšave družinske politike na področju usklajevanja dela in družine. Zaključno poročilo (CRP). Ljubljana: ARRS, MDDSZ. Fakulteta za družbene vede, Center za socialno psihologijo.
Runswick C.K. (2007). “The tribunal was the most stressful thing: more stressful than my son's diag-nosis or behaviour«. The Experiences of Families Who Go to the Special Educational Needs and Disability Tribunal (Sendist). Disability & Society, 22(3), 315-328. DOI: https://doi.org/10.1080/09687590701259674
Russell, F. (2003). The expectations of parents of disabled children. British Journal of Special Educa-tion, 30(3), 144-149. DOI: https://doi.org/10.1111/1467-8527.00300
Ryan, S. (2005b). People don't do odd, do they? Mothers making sense of the reactions of others to their learning disabled children in public places. Children's Geographies, 3(3), 291-305. DOI: https://doi.org/10.1080/14733280500352920
Ryan, S. & Runswick C.K. (2008). Repositioning mothers: mothers, disabled children and disability studies. Disability & Society, 23(39), 199-210. DOI: https://doi.org/10.1080/09687590801953937
Shelton, N. & Johnson, S. (2006). »I think mother-hood for me was a bit like a double-edged sword«. The Narratives of Older Mothers. Journal of Community and Applied Social Psychology, 16(4), 316-330. DOI: https://doi.org/10.1002/casp.867
Sloper P., Greco V. & Beecham J. (2006). Key worker services for disabled children. What charac-teristics of services lead to better outcomes for children and families? Child: Care, Health and Development , 32(2), 147-157. DOI: https://doi.org/10.1111/j.1365-2214.2006.00592.x
Smith, T.E.C., Gartin, C.B., Murdick, L.N. & Hil-ton, A. (2006). Families and children with special needs: Professional and partnerships. Includes the idea Improvement Act. Upper Saddle River, New Jersey Columbus, Ohio: Merrill Prentice Hall.
Smith, T.E.C., Polloway, E.A., Patton, J.R. & Dowdy, C.A. (2004). Teaching students with spe-cial needs in inclusive settings (4th ed.). Boston: Allyn & Bacon.
Sprenger, R.K. (2004). Die Entscheidung liegt bei dir! Wege aus der alltäglichen Unzufriedenheit. Frankfurt am Main: Campus.
Strgar, T. (2004). Stališča učiteljev do pomoči učencem z učnimi težavami v osnovni šoli. Diplomsko delo. Ljubljana: Univerza v Ljubljani, Pedagoška fakulteta Ljubljana.
Strle, M. (2006). Ugotavljanje poklicne izgorelosti pri delu z otroki in mladostniki s posebnimi potrebami. Ljubljana. Defektologica Slovenica, 14(2), 49-58.
Walsh, F. (1993). Normal family processes. The guilford family therapy series. New York/London: The Guildford Press.
Watson, N., McKie, L. & Hughes, B. (2004). De-pendence, needs and care. The potential for disa-bility and feminist theorists to develop an eman-cipatory model. Sociology, 38(2), 331-350. DOI: https://doi.org/10.1177/0038038504040867
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2022 metka novak
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.