Families As System Actors In Discovery: Embedding Co-Production Within The Equilibrium Systems Model Of Employment
Open AccessAuthors
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Peter Smith
Centre for Disability Employment Research and Practice
https://orcid.org/0000-0001-9888-8113
Keywords:
customised employment, family involvement, disability employment, co-production, systems theory, rehabilitationAbstract
Background: Discovery is a core practice within Customised Employment, intended to identify the strengths, interests, and support needs of people with disability to inform meaningful employment pathways. Despite strong evidence that families influence employment outcomes, their role within Discovery remains informal, inconsistent, and largely untheorised.
Aim: This paper examines the role of families within Discovery and proposes a structured model for embedding family involvement as a core component of inclusive employment practice.
Methods: Drawing on the Equilibrium Systems Model of Employment (ESME), international literature, and applied practice experience, the paper develops the Family Discovery Model as a conceptual and practice-informed framework. The model is examined in relation to co-production theory, Customised Employment fidelity, and contemporary disability employment policy contexts.
Results: The Family Discovery Model positions families as system actors who contribute through narrative building, network mapping, and collaborative reflection. These functions strengthen employment planning, improve alignment between participant goals and service delivery, and enhance system coherence. Practice-based vignettes demonstrate how structured family involvement can support school-to-work transitions, movement from segregated employment, and pathway development for individuals with complex support needs.
Conclusion: Embedding families as co-producers within Discovery offers a practical and scalable mechanism for strengthening rehabilitation practice and advancing inclusive employment systems. By operationalising family involvement within a structured framework, the model supports improved employment outcomes, greater fidelity to Customised Employment principles, and stronger alignment with contemporary disability policy objectives.
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Australian Government Department of Social Services. (2020). Mid-term review of the Disability Employment Services (DES) program. https://www.dss.gov.au/employment/disability-employment-services
Australian Government Department of Social Services. (2025a). Inclusive Employment Australia Deed 2025–2030. Commonwealth of Australia.
Australian Government Department of Social Services. (2025b). Inclusive Employment Australia guidelines: Part A – Administrative requirements. Commonwealth of Australia.
Australian Government Department of Social Services. (2025c). Inclusive Employment Australia guidelines: Part B – Servicing requirements. Commonwealth of Australia.
Bovaird, T. (2007). Beyond engagement and participation: User and community co-production of public services. Public Administration Review, 67(5), 846–860. https://doi.org/10.1111/j.1540-6210.2007.00773. DOI: https://doi.org/10.1111/j.1540-6210.2007.00773.x
Brookfield, S. D. (2017). Becoming a critically reflective teacher (2nd ed.). Jossey-Bass.
Butterworth, J., Christensen, J., & Timmons, J. (2024). State of the science: Employment of people with intellectual and developmental disabilities. Boston: Institute for Community Inclusion.
Callahan, M., & Griffin, C. (2011). Discovery: Charting the course to employment. Griffin-Hammis Associates.
Cargo, M., & Mercer, S. L. (2008). The value and challenges of participatory research: Strengthening its practice. Annual Review of Public Health, 29, 325–350. https://doi.org/10.1146/annurev.publhealth.29.091307.083824 DOI: https://doi.org/10.1146/annurev.publhealth.29.091307.083824
Carter, E. W., Austin, D., & Trainor, A. A. (2012). Predictors of postschool employment outcomes for young adults with severe disabilities. Journal of Disability Policy Studies, 23(1), 50–63. https://doi.org/10.1177/1044207311414680 DOI: https://doi.org/10.1177/1044207311414680
Creswell, J. W., & Plano Clark, V. L. (2018). Designing and conducting mixed methods research (3rd ed.). SAGE Publications.
Fixsen, D. L., Naoom, S. F., Blase, K. A., Friedman, R. M., & Wallace, F. (2005). Implementation research: A synthesis of the literature. National Implementation Research Network.
Francis, G. L., Gross, J. M. S., Turnbull, A. P., & Blue-Banning, M. (2022). Barriers to family involvement in transition planning: A qualitative metasynthesis. Career Development and Transition for Exceptional Individuals, 45(2), 78–91. https://doi.org/10.1177/21651434211000011
Francis, G. L., Gross, J. M. S., Turnbull, A. P., & Turnbull, R. (2014). An exploratory investigation into family perspectives after participating in the Kansas Family Employment Awareness Training. Career Development and Transition for Exceptional Individuals, 37(2), 91–104. https://doi.org/10.1177/2165143412469827 DOI: https://doi.org/10.1177/2165143414528241
Francis, G. L., Gross, J. M. S., Turnbull, A. P., & Turnbull, R. (2013). The Family Employment Awareness Training (FEAT) program: Building the capacity of families to improve employment outcomes. Journal of Vocational Rehabilitation, 38(1), 67–81. https://doi.org/10.3233/JVR-130621
Griffin, C., Hammis, D., & Geary, T. (2007). The Job Developer's Handbook: Practical Tactics for Customised Employment. Brookes Publishing.
Grigal, M., Hart, D., & Weir, C. (2019). Post-secondary education and employment for students with intellectual disability: Current status and future directions. Intellectual and Developmental Disabilities, 57(5), 358–369. https://doi.org/10.1352/1934-9556-57.5.358
Gross, J. M. S., Francis, G. L., Choi, J. H., Stanley, J. L., & Bowen, E. (2025). Professionals need information too: Exploratory data from the Family Employment Awareness Training (FEAT) in Kansas. Inclusion, 13(2), 87–101. https://doi.org/10.1352/2326-6988-13.2.87 DOI: https://doi.org/10.1352/2326-6988-13.2.87
Grossi, T., Bates, P., & Hewitt, A. (2014). The Kansas Family Employment Awareness Training (FEAT): Building capacity for employment through family training. Journal of Policy and Practice in Intellectual Disabilities, 11(3), 201–210. https://doi.org/10.1111/jppi.12088 DOI: https://doi.org/10.1111/jppi.12088
Hetherington, S. A., Durant-Jones, L., Johnson, K., Nolan, K., Smith, E., Taylor-Brown, S., … & Tuttle, J. (2010). The lived experiences of adolescents with disabilities and their parents in transition planning. Focus on Autism and Other Developmental Disabilities, 25(3), 163–172. https://doi.org/10.1177/1088357610373760 DOI: https://doi.org/10.1177/1088357610373760
Inge, K. J., Graham, C. W., Brooks-Lane, N., Wehman, P., & Griffin, C. (2018). Defining customized employment as an evidence-based practice: Results of a focus group study. Journal of Vocational Rehabilitation, 48(2), 155–166. https://doi.org/10.3233/JVR-180928 DOI: https://doi.org/10.3233/JVR-180928
Kirby, A. V. (2016). Parent expectations mediate outcomes for young adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46(5), 1643–1655. https://doi.org/10.1007/s10803-015-2691-3 DOI: https://doi.org/10.1007/s10803-015-2691-3
Kramer, J. M., Coster, W., Kao, Y.-C., Snow, A., Orsmond, G., & Cohn, E. S. (2020). The role of parental expectations in predicting post-school outcomes for young adults with developmental disabilities. Journal of Autism and Developmental Disorders, 50(4), 1308–1320. https://doi.org/10.1007/s10803-019-04356-7
Luecking, D. M., Gumpman, P., Saecker, L., & Cihak, D. (2006). Perceived quality of life changes of job seekers with significant disabilities who participated in a customized employment process. Journal of Applied Rehabilitation Counseling, 37(4), 22–28. https://doi.org/10.1891/0047-2220.37.4.22 DOI: https://doi.org/10.1891/0047-2220.37.4.22
Mank, D., & Grossi, T. (2013). Employment outcomes for people with intellectual and developmental disabilities: The enduring gap. Research and Practice for Persons with Severe Disabilities, 38(2), 81–86. https://doi.org/10.1177/154079691303800203
McConnell, D., Martin, J., & Hennessey, A. (2019). Families, Disability, and Inclusive Employment: Rethinking Roles and Responsibilities. Disability & Society, 34(5), 722–740. https://doi.org/10.1080/09687599.2018.1559437
Migliore, A., Mank, D., Grossi, T., & Rogan, P. (2012). Integrated employment or sheltered workshops: Preferences of adults with intellectual disabilities, their families, and staff. Journal of Vocational Rehabilitation, 37(3), 183–195. https://doi.org/10.3233/JVR-2012-0611 DOI: https://doi.org/10.3233/JVR-2012-0611
National Disability Insurance Scheme (NDIS). (2024). Participant Employment Strategy 2024–2026. National Disability Insurance Agency. https://www.ndis.gov.au
Needham, C., & Carr, S. (2009). Co-production: An emerging evidence base for adult social care transformation. Social Care Institute for Excellence.
Riesen, T., Hall, S., Keeton, B., & Snyder, A. (2023a). Internal consistency of the customized employment discovery fidelity scale: A preliminary study. Rehabilitation Counseling Bulletin. https://doi.org/10.1177/00343552211043259 DOI: https://doi.org/10.1177/00343552211043259
Riesen, T., Snyder, A., Byers, R., Keeton, B., & Inge, K. (2023). An updated review of the customized employment literature. Journal of Vocational Rehabilitation, 58(1), 27–38. https://doi.org/10.3233/JVR-221222 DOI: https://doi.org/10.3233/JVR-221222
Riesen, T., Hall, S., Keeton, B., & Jones, K. (2019). Customized employment discovery fidelity: Developing consensus among experts. Journal of Vocational Rehabilitation, 50(1), 23–37. https://doi.org/10.3233/JVR-180985 DOI: https://doi.org/10.3233/JVR-180985
Schutz, M. A., Awsumb, J. M., Carter, E. W., Burgess, L., & Schwartzman, B. (2025). Connecting youth with significant disabilities to paid work: An innovative school-based intervention. Intellectual and Developmental Disabilities, 63(4), 329–343. https://doi.org/10.1352/1934-9556-63.4.329 DOI: https://doi.org/10.1352/1934-9556-63.4.329
Shogren, K. A., Dean, E. E., Griffin, C., Steveley, J., Sickles, R., Wehmeyer, M. L., & Palmer, S. B. (2017). Promoting change in employment supports: Impacts of a community-based change model. Journal of Vocational Rehabilitation, 47(1), 19–29. https://doi.org/10.3233/JVR-170880 DOI: https://doi.org/10.3233/JVR-170880
Smith, P. (2018). A systems analysis of factors that lead to the successful employment of people with a disability (Doctoral dissertation, University of Sydney).
Smith, P. (2023a). Customised employment and the NDIS: A pathway for inclusive reform. Journal of Health and Rehabilitation Sciences, 2(2), 81–95. https://doi.org/10.33700/jhrs.2.2.81 DOI: https://doi.org/10.33700/jhrs.2.2.81
Smith, P. (2023b). Reimagining disability employment: Frameworks, fidelity, and the future of customised work. Melbourne: Centre for Disability Employment Research and Practice.
Smith, P. (2026). The Equilibrium Systems Model of Employment: A systemic framework for inclusive pathways. Manuscript under review.
Test, D. W., Fowler, C. H., & Kohler, P. (2009). Evidence-based predictors of improved postschool outcomes for students with disabilities. Career Development for Exceptional Individuals, 32(3), 160–181. https://doi.org/10.1177/0885728809346960 DOI: https://doi.org/10.1177/0885728809346960
United Nations. (2006). Convention on the Rights of Persons with Disabilities. https://www.un.org/disabilities/documents/convention/convoptprot-e.pdf
University of Kansas. (2025). Family Employment Awareness Training (FEAT) research brief. Kansas University Center on Developmental Disabilities.
Wehmeyer, M. L., Shogren, K. A., Little, T. D., & Lopez, S. J. (2011). Development of self-determination through the life course. Springer. https://doi.org/10.1007/978-94-024-1042-6 DOI: https://doi.org/10.1007/978-94-024-1042-6
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