Exploring the Parental Experiences in the Media: A Qualitative Analysis of Articles Written by Parents of Children with Autism in Bosnia and Herzegovina

Elvira Celebic; Haris Memisevic

doi:10.33700/jhrs.2.1.62

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Open Access

Authors

Elvira Celebic https://orcid.org/0000-0001-9940-6390
Haris Memisevic University of Sarajevo https://orcid.org/0000-0001-7340-3618

https://doi.org/10.33700/jhrs.2.1.62

Keywords:

parents, autistic children, content analysis, Bosnia and Herzegovina

Abstract

Aim: This paper presents a qualitative study of the experiences of parents raising children with autism, as reflected in the media. The study aimed to explore the lived experiences of parents of children with autism and the challenges they face in Bosnia and Herzegovina.

Methods: A content analysis of 20 media articles featuring parents of autistic children was conducted. The articles were selected from a range of sources, including newspapers, magazines, and online news portals.

Results: We identified four major themes: supports, education, spousal relationships, and future. It should be noted that these themes are often intertwined.

Conclusion: The findings highlight the importance of providing support and resources to parents of children with autism, as well as the need for greater awareness and understanding of the challenges they face. The implications of these findings for policy and practice are discussed, and suggestions for future research are presented.

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References

Altiere, M. J., & von Kluge, S. (2009). Searching for acceptance: Challenges encountered while raising a child with autism. Journal of Intellectual & Developmental Disability, 34(2), 142-152.

American Psychiatric Association. (2013). Diagnostic and Statistical Manual of Mental Disorders (5th ed.). APA, Washington, DC.

Bonis, S. (2016). Stress and Parents of Children with Autism: A Review of Literature. Issues in Mental Health Nursing, 37(3), 153-163.

Boshoff, K., Gibbs, D., Phillips, R. L., Wiles, L., & Porter, L. (2018). Parents' voices: “Our process of advocating for our child with autism.” A meta-synthesis of parents' perspectives. Child: Care, Health and Development, 44(1), 147-160.

Boskus-Genc, G., & Sani-Boskurt, S. (2022). How parents of children with autism spectrum disorder experience the COVID-19 pandemic: Perspectives and insights on the new normal. Research in Developmental Disabilities, 124, 104200.

Brobst, J. B., Clopton, J. R., & Hendrick, S. S. (2009). Parenting Children With Autism Spectrum Disorders:The Couple's Relationship. Focus on Autism and Other Developmental Disabilities, 24(1), 38-49.

Brown, M., Whiting, J., Haque, A., & Kahumoku-Fessler, E. (2021). A Summative Content Analysis of Stress and Coping among Parents of Children with Autism. The American Journal of Family Therapy, 49(3), 237-250.

Chu, S. Y., Mohd Normal, S. N. S. A. b., McConnell, G. E., Tan, J. S., & Joginder Singh, S. K. D. (2020). Challenges faced by parents of children with autism spectrum disorder in Malaysia. Speech, Language and Hearing, 23(4), 221-231.

Cox, C. R., Eaton, S., Ekas, N. V., & Van Enkevort, E. A. (2015). Death concerns and psychological well-being in mothers of children with autism spectrum disorder. Research in Developmental Disabilities, 45-46, 229-238.

Daulay, N. (2021). Home education for children with autism spectrum disorder during the COVID-19 pandemic: Indonesian mothers experience. Research in Developmental Disabilities, 114, 103954.

Disdarevic, A., Memisevic, H., Osmanovic, A., & Mujesinovic, A. (2022). Family quality of life: perceptions of parents of children with developmental disabilities in Bosnia and Herzegovina. International Journal of Developmental Disabilities, 68(3), 274-280.

Dunn, M. E., Burbine, T., Bowers, C. A., & Tantleff-Dunn, S. (2001). Moderators of Stress in Parents of Children with Autism. Community Mental Health Journal, 37(1), 39-52.

Fombonne, E. (2003). Modern views of autism. The Canadian Journal of Psychiatry / La Revue canadienne de psychiatrie, 48, 503-505.

Gomes, P. T. M., Lima, L. H. L., Bueno, M. K. G., Araújo, L. A., & Sousa, N. M. (2015). Autism in Brasil: a systematic review of family challenges and coping strategies. Jornal de Pediatria, 91.

Gona, J. K., Newton, C. R., Rimba, K. K., Mapensi, R., Kihara, M., Vijver, F. V., & Abubakar, A. (2016). Challenges and coping strategies of parents of children with autism on the Kenyan coast. Rural Remote Health, 16(2), 3517.

Griffith, G. M., Hastings, R. P., Nash, S., & Hill, C. (2010). Using Matched Groups to Explore Child Behaviour Problems and Maternal Well-Being in Children with Down Syndrome and Autism. Journal of Autism and Developmental Disorders, 40(5), 610-619.

Guler, J., de Vries, P. J., Seris, N., Shabalala, N., & Frans, L. (2018). The importance of context in early autism intervention: A qualitative South African study. Autism, 22(8), 1005-1017.

Hidalgo, N. J., McIntyre, L. L., & McWhirter, E. H. (2015). Sociodemographic differences in parental satisfaction with an autism spectrum disorder diagnosis. Journal of Intellectual & Developmental Disability, 40(2), 147-155.

Hobart, H. M. (2008). Autism and Family in the People's Republic of China: Learning from Parents' Perspectives. Research and Practice for Persons with Severe Disabilities, 33(1-2), 37-47.

Kuhaneck, H. M., Burroughs, T., Wright, J., Lemancsyk, T., & Darragh, A. R. (2010). A Qualitative Study of Coping in Mothers of Children with an Autism Spectrum Disorder. Physical & Occupational Therapy In Pediatrics, 30(4), 340-350.

Lau, E. Y. H., & Lee, K. (2021). Parents’ Views on Young Children’s Distance Learning and Screen Time During COVID-19 Class Suspension in Hong Kong. Early Education and Development, 32(6), 863-880.

Lee, J. D., Terol, A. K., Yoon, C. D., & Meadan, H. (2023). Parent-to-parent support among parents of children with autism: A review of the literature. Autism, 0(0), 13623613221146444.

Ludlow, A., Skelly, C., & Rohleder, P. (2011). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology, 17(5), 702-711.

Massoni, N., Bentenuto, A., Filosofi, F., Tardivo, A., Strathearn, L., Sarei, K., De Falco, S., Venuti, P., Iandolo, G., & Giannotti, M. (2023). Parenting a Child with a Neurodevelopmental Disorder during the Early Stage of the COVID-19 Pandemic: Quantitative and Qualitative Cross-Cultural Findings. International Journal of Environmental Research and Public Health, 20(1), 499.

Memisevic, H., Đordjević, M., & Glumbić, N. (2022). Quality of Life for Individuals with Autism and Pervasive Developmental Disabilities. In J. L. Matson & P. Sturmey (Eds.), Handbook of Autism and Pervasive Developmental Disorder: Assessment, Diagnosis, and Treatment (pp. 185-208). Springer International Publishing.

Midence, K., & O’neill, M. (1999). The Experience of Parents in the Diagnosis of Autism: A Pilot Study. Autism, 3(3), 273-285.

Mujkanovic, E., Memisevic, H., Mujkanovic, E., Secic, S., & Biscevic, I. (2016). Mothers' Satisfaction with Treatment Opportunities for their Children with Autism Spectrum Disorder in Bosnia and Herzegovina- Materia socio-medica, 28(4), 288.

Mujkanovic, E., Mujkanovic, E., Pasalic, A., Biscevic, I., & Memisevic, H. (2017). Quality of Educational Support for Children with Autism Spectrum Disorder in Bosnia and Herzegovina--Perception of Parents and Professionals. International Electronic Journal of Elementary Education, 9(4), 829-836.

Preece, D., Symeou, L., Stošić, J., Troshanska, J., Mavrou, K., Theodorou, E., & Frey Škrinjar, J. (2017). Accessing parental perspectives to inform the development of parent training in autism in south-eastern Europe. European Journal of Special Needs Education, 32(2), 252-269.

Raju, S., Hepsibah, P. E. V., & Niharika, M. K. (2023). Quality of life in parents of children with Autism spectrum disorder: Emphasising challenges in the Indian context. International Journal of Developmental Disabilities, 1-8.

Sen, E., & Yurtsever, S. (2007). Difficulties Experienced by Families With Disabled Children. Journal for Specialists in Pediatric Nursing, 12(4), 238-252.

Simpson, K., & Adams, D. (2022). Brief Report: Covid Restrictions had Positive and Negative Impacts on Schooling for Students on the Autism Spectrum. Journal of Autism and Developmental Disorders.

Stankovic, M., Stojanovic, A., Jelena, S., Stankovic, M., Shih, A., & Stankovic, S. (2022). The Serbian experience of challenges of parenting children with autism spectrum disorders during the COVID-19 pandemic and the state of emergency with lockdown. European Child & Adolescent Psychiatry, 31(4), 693-698.

Stanojević, N., Nenadović, V., Fatić, S., & Stokić, M. (2017). Exploring factors of stress level in parents of children with autistic spectrum disorder. Specijalna edukacija i rehabilitacija, 16(4), 445-463.

Tang, L., & Bie, B. (2016). The stigma of autism in china: an analysis of newspaper portrayals of autism between 2003 and 2012. Health Communication, 31(4), 445-452.

Tomlinson, M., Yasamy, M. T., Emerson, E., Officer, A., Richler, D., & Saxena, S. (2014). Setting global research priorities for developmental disabilities, including intellectual disabilities and autism. Journal of Intellectual Disability Research, 58(12), 1121-1130.

Seidan, J., Fombonne, E., Scorah, J., Ibrahim, A., Durkin, M. S., Saxena, S., Yusuf, A., Shih, A., & Elsabbagh, M. (2022). Global prevalence of autism: A systematic review update. Autism Research, 15(5), 778-790.